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Sunday, December 19, 2004
THE NINE SOULS OF WILDE CUNNINGHAM, PART IV
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"Haaaaaaaaaaaaamlet," lilone Sandgrain wails at me, when I tell her I'm talking with Angelique about Micah’s flirtation techniques. "Why? Wwwwwwwwhy would it matter if he flirts in real life? I think most men do, or want to in a way that's theirs."
"Yeah," I observe, "but a man who's disabled risks some pretty awful responses or even facial reactions, I'd imagine."
Before she answers, lilone first describes to me the policies that her care center abide by, regarding romances and the personal lives of their clients. "[N]ow couple that with the risk and often heart breaks with online relationships, I don't think i could find a waiver which covers that. Not one big enough."
So her strong reaction against online romances the previous day seems more understandable now. What's more, several of the wildes aren't necessarily interested in them, to begin with.
"Yeah, we have two people in wilde who are in relationships in real life," she says, then stops and recounts. "No, three. Two of them have been a couple 50 years." (That would be Danny and Johanna.) "One about six months, one has been married and divorced... You could say Scott has a love, too. She recently left the program but is still with us in heart/spirit."
All that said, lilone continues. "When we play in-world during program hours, we won't be focusing on romance, but would safely support it, as best we could. All the members of wilde experience all the same feelings and emotions you and I do. They know shame. Their whole lives, all of them. Disabilities carry shame inherently. Strong shame. They almost always feel shame. Or could at the drop of a pin."
"Yes," I say, chastened. "And that's why I wonder if being able to flirt in Second Life like this is a unique thing for Micah."
"Maybe in the sense that he’s not scolded for it. In real life he'd be scolded. That’s one way Second Life frees him. They miss a lot of the bad things real life has...
"Sorry for the strong reaction," she adds, after a bit. "Guess I was being protective."
Then again, that's understandable too. lilone Sandgrain has been the wildes' interpreter for over three years. Before that, she says, "I had other more managerial-type jobs. When I discovered working with them, I left such things behind. Gave the money up. This was worth my investment of self. Not some never-satisfied boss, even when I was overachieving. Office manager, sales manager, marketing director, that kinda crap. No regrets, even when rent’s due."
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She laughs, as if thinking back on her entry into her life’s work. “One day my never-satisfied boss when I was marketing director and pulling in lots of company money; one day he got on my case for smoking a cig on my break. And I said, Mmmmm, no more. Walked out. Same day. Went full-time into this. Their loss. My crew’s gain.”
This brings me to a point I’ve wondered about, while talking and interacting with wilde Cunningham—how much their speech and actions are taken directly from what the members of wilde suggest, and how much of their decisions are actually shaped by lilone Sandgrain, the non-disabled woman at the controls?
“Honestly, before I say stuff,” lilone answers, “or even sometimes as I say stuff, I'm full putty in their hands. I toss out a lot of multiple choices, and others do too. I do interpret some for their sounds or gestures of approval/disapproval, and I gaze about the room constantly. I think they would say that I communicate accurately their wishes/minds in the high 90 [percent]. Some would give it tens. I ask daily on this… it’s my gift. In fact, if I may say so, my boss has told me how no one has had such a gifting with this group ever there, due to their communication challenges. But I think the key is, I know they are much deeper than I give them credit for, and I give them tons [already]. They are deep, you know. Most most deep.”
“You know,” I muse out loud, “I had thought to call any entry I write [on this] something like ‘The Nine Souls of Wilde Cunningham’. But it's actually more like there's ten.”
“Yeah,” lilone Sandgrain responds, “but I'm the mascot, if you’re counting me. That’s all I wanta be. Just the driver. Idea suggester.”
In the coming months, the wildes will learn to make something out of nothing. “I am going to be teaching them to build soon,” Toy LaFollette tells me, “and looking forward to it.”
But the immediate challenge is to improve their access. The care center computer is slow and stuttering, and prevents wilde Cunningham from performing even the most basic Second Life tasks. (Ironically, then, their computer is more disabled then they are.) Several residents have taken it on themselves to help raise funds. In this, they’re greatly helped by all lilone’s related in-world efforts. (Her latest wilde-related project is a scale recreation of the wildes at collective play in-world, located in Bolinas, 27, 133.)
To raise funds for the new computer, she says, “Folks just pay their [Second Life] profile. That’s what we have set up now. And 50% of the sales [at lilone’s] gift shop in here I give ‘um… they are about half way to a [new] computer. But there are some here who are passionate about helping them make it. Even before Christmas, I hear.
“But we will see,” lilone Sandgrain finishes. “They learn patience. They have no choice on that.”
After my initial interview with wilde Cunningham, I discover they’ve left a notecard in my inventory:
“The following was not covered in your questioning line but wilde would like included (with loud and strong group approval) the following:
"'As you've been kind to us, in spite of our challenges, so be kind to others in spite of their flaws. Every soul has its disabilities. When you run into someone who makes you feel uncomfortable, remember the golden rule.'"
With their permission, the wildes are depicted in the screenshots and photographs to the right. Photographs taken and generously provided here by lilone Sandgrain.
12/29: Belated thanks to Kim Anubis for being first to tip me on the tale of wilde. - HL
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Comments
Great story Hamlet. Very unique and shows how Secondlife can be used in different environments to give freedom to those people who may not otherwise be able to be free in real life.
Posted by: Chage at Dec 19, 2004 1:01:22 PM
Thank you Hamlet for covering this story!
Second Life at it's best!
May all the Wilde's have a truly wonderful holiday season!
Merwan Marker
Posted by: Awakening Avatars at Dec 20, 2004 2:57:58 PM
i read the artical, 14 printed pages, today to wilde. (= copies are being requested to be sent to relatives and others in the hiearchy. the members of wilde are proud of their contribution and thrilled again at the overall embrace of the community. they want to share not only their triumphs and struggles with this hope that others will be inspired to plug on, and also to impart that you dont have to be perfect to make a perfect contribution to life!! lil things matter!! this artical was huge-- sl has been huge--- ya'lls hearts have been huge! ty all
simply, lilone
Posted by: lilone sandgrain at Dec 20, 2004 3:49:26 PM
I am 16 and read every single part to this story (might I said it's the best one you've done thus far...even better than your election coverage). This story is not only moving, but great to know that Second Life has the ability for all types of people to play & enjoy. lilone - I hope you get your new computer before Christmas!
Posted by: ian at Dec 20, 2004 4:17:51 PM
Thanks! Meanwhile, lilone Sandgrain, who's having trouble posting in this Comments section, asked me to put this here-- it's an update on wilde's effort to buy a new computer, and also with information on helping them out (as some non-SL readers have asked about that-- information relevant to them in particular is toward the bottom of the post.)
================================================
hello everyone~ hamlet has informed me he's getting a lot of feedback on this artical and much of it coming with offers and inquiries on how to help. (=
much of what we've needed for a computer has been saved. we have enough currently once all our GOM orders have sold to get a computer which will sustain SL. (= the communities generousity has been overwhelming! if you are still interested in putting some funds towards that you can still do so via wilde cunningham's profile in second life or im me (email is fine too) if you have questions, need a tax receipt, whatever... the prices in GOM have toppled recently putting a small dent in the size we can afford. we plan on purchasing a new computer with whatever funds have accumulated the end of the first week in January. we are holding off till then with hopes of also getting a service plan with the computer, but we will use what we
have aquired at that time.
there are other ways you can reach out as well. i'll list a few for you, but its only what we've been able to come up with in the idea arena.
wilde had been supplimenting their stipend (500L devided by 9 souls doesnt go too far) by the christmas joys shoppe in bretton. christmas has come and gone now so they are looking and thinking up other ways to independently save for items of interest to them.
someone suggested, and wilde approved, of allowing items with full mod's for them to sell at a storefront instead. i'm not sure they will ever have time to build the material to stock a storefront on their own. if this idea appeals to you please let me know. items wouldnt need to be one of a kind or sold exclusively by them.
one of wilde's greatest joys playing sl has been in getting to know people. it comes so much faster that anything they've ever experienced as people bypass the stigmas of their appearance and communication challenges. no one has to play 20 questions with them but me and oft i know what they are saying long before that just from knowing them as well as i do. that
enabling feature of second life cant be understated. they miss the shame which generally accompanies their attempting to get to know a stranger. wilde LOVES to make money, they've never been able to do anything like that
before. but more than money, they crave to know people. they yearn to find good friends to laugh with and learn along side.
for sure, wilde does not need to be pitied, or baby talked... if you are fortunate to get to know them, YOU are the one who suddenly feels disabled by all they will share with YOU! ((= i can't over state that enough.
for a better chance of hooking up with them in world i suggest you join their friends of friends group which is open enrollment. half the time they come into world they try to shoot off a greeting in that group's im to say hello. its the simplist way to know if they are online when you are. at least until we've traded cards with you.
if any of you have too much land tier left you can also donate small pieces to them via that group so that they can play around with ideas they have a bit more. currently they are using my own land tier, but its just about at quota and they still have ideas for things they'd like to do.
another enriching thing, if you are one of the people who can do such as this, is come by for a scheduled visit at the day program, get a glimpse of their lives. or perhaps set up a scheduled phone call where we can go to speaker phone. again contacting me in world or by my email at the bottem is the best way to expedite this. we are having our first guest speaker met
via sl today. it will be a 2 hour visit and they are extreamly eager. in the spring another sl resident has expressed an interest in visiting for a few days.
this last suggestion will probably only be possible for a very small number of people. should you live in the boston area and have a few hours extra time during your week on a regular basis, wilde would love to have someone
else who can be their hands and help them play the game at the day program. time is probably our greatest need at the moment. since we are a day program and not just a group who plays computer, there are many many high priority needs that require my time during the day. while i'd love nothing better than to only play sl with them, the reality is in a good week we can play 4 times about 45 min a session. heh, unless folks want to inundate my bosses with letters requesting more inworld time with wilde! heh (= but more time to play will either have to come from a second aide such as myself or the heirarchy above realizing the value of wilde within the community and
redistributing my work duties to accomidate more computer time. they have many dreams for second life. its probably been the single most powerful tool to enrich them in the 3 years time i've spent there. i could never tell you all the reasons why or how.
finally, no matter what you can or cant do from the above list of ideas, you can do something where ever you are in the communities you find yourself in. its not difficult to care. needs always outweight the availablity of aide. the demand is far greater than the supply? (= and thats true in every community in every nation!
i'm more than willing to discuss any of these things via email, or just to hear how wilde may have inspired you. they love to hear that too. to this day that remains their number one objective (to my surprise) educating the world and inspiring others to be all they can be. additionally they want to pave the way for others to also come who would profit as they do in sl.
PLEASE feel free to email me at [email protected] i'm happy to follow up
with folks and take this to whereever it may go next.
hope this has helped. (= let me/us hear from you~
hugs
lilone sandgrain
Posted by: Hamlet Linden at Dec 30, 2004 9:19:36 AM
hi i'm the person who drives wilde for them when they play second life. i wanted to share that this experience has revolutionized their lives in many many ways! feel free to check out our blog for the latest on whats happening with them and in relationship to second life. on the left side is a catagory called wilde's writings. you'll find many touching poems and essays they've composed!
Posted by: lilone sandgrain at Jan 27, 2005 2:36:58 PM
oops thats at braintalk.blogs.com/live2give
their new island is up and running wonderfully too. feel free to check it out as well. its full of inspiration and outreach as well as a very safe place~
hugs
lilone
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